Category Archives: Living With Jeff

I love, and am incredibly frustrated by, Amazon. That massive corporation with the boxes that smile at you when you receive your free two-day shipping treasure.

Jeff and I have been trying to get our CBD Oil products on Amazon, and have been running into issue after issue. Just when we think we’ve jumped through the final hoop… BAM, back into issues. What’s frustrating is that it seems to be the same issue over and over – nobody really knows what CBD really is. They automatically assume it’s the dreaded, federally regulated, controlled substance THC. If THC is a supervillain, then CBD would be its Bizzaro twin superhero.  I’m not saying THC is bad (it’s not), but CBD, although similar, is different and free from many of the “negatives” of THC.

Back when we first started selling CBD I wrote about how CBD is different than THC. Sure, CBD is also found in marijuana plants, but the CBD oil we sell is from hemp. There’s no THC in it. We’ve been going in circles with Amazon, working with CV Sciences to get them what they need, and still haven’t gotten it figured out yet.

How I feel trying to make my way through Amazon’s web.

The world is weird about CBD. I get it. I was too until I looked into it a little bit. Once I started reading other people’s stories about how CBD has helped them, and seeing first-hand how it helps my husband, I truly believe that it’s a good thing.

It’s become clear to me that a great deal of customer service workers are from, or currently in, India. Now, I love the sound of their voices: the roundness of their words, the melodious curve of their sentences are almost hypnotic to me, and I find myself mesmerized by the dripping-water-quail-like tones.  Great if you want to meditate, not so great if you’re trying to understand why your CBD Oil balm isn’t available yet even though you’ve sent in everything and it’s been added to your inventory. I’ve worked with, Ankit K., Bhagavatula P., Preethi R. and now am working with Barby. Barby seems great, but also a little confused about why our product isn’t showing up as available.

Regardless, we’re still working with them and will hopefully have it available on Amazon soon.  Until then, however, you can still check out all our great products on our website: www.livingwithjeff.com
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Oh, hey, another fun thing: I have been “permanently limited” from using PayPal. Go ahead and take a guess why. When I was setting up my account I reviewed their Acceptable Use Policy and all the rules, etc. about what you can/cannot sell, and my CBD Oil products did not fall into any of their categories. It is not federally regulated (no THC, remember?), not a prescription, not a controlled substance, non-narcotic… truly. I read the rules and honestly believe our product is none of those things.

Paul in the Risk Management Department believes otherwise and now I’ve been banned from using PayPal. I did send an inquiry requesting the criteria of acceptable supplements, etc., but I’ve not yet received a reply. I understand if they don’t want to sell it or allow payments for CBD to flow through their company. Fine, whatever, just say that. I don’t like being told I broke the rules and am now banned. I’m happy to play by the rules – I just need to know what they are.

Anyway, all CBD oil product woes aside, Jeff is scheduled to start a new MS med in October – Ocrevus. This one is an infusion, newly approved by the FDA, and comes with all sorts of shiny promises. It’s been approved for treating Relapsing-Remitting MS (that’s what Jeff has), and also Primary Progressive MS (faster moving). There have even been reports that some people who start Ocrevus have regained some of their lost functions. It would be super if Jeff could regain some of his balance, coordination, or ability to walk. MS affects more than just those three things for him, but I’ll not bore you with the entirety of MS’s attack on my husband.

For now, in addition to writing your Congressmen about the unnecessary struggles Jeff and I are going through, I want to encourage you all to not jump to conclusions. Investigate for yourself before making a judgment. You might find a really great balm for your sore joints and muscles, or an oil or supplement that quiets your tremors and restless legs. Just because “someone told me” something doesn’t make it true. Think for yourself. Check things out. Then make your decision.

My thoughts are my own, but my pictures are generally found on Pinterest or via Google. If what I write resonates with you please share with your friends or someone you think would like it! We’d love it if you follow us on Facebook (Melissa Gale or Living With Jeff), or Twitter (@livingwjeff or @write2unpack). If you have any topics you’d like to talk about, reach out to me at write2unpack@gmail.com, or Jeff at livingwithjeff61@gmail.com. Oh, hey, and if you sign up here to follow me you’ll never miss a post!

Wow! Here I am on another adventure. I’ve had one blog up and running for almost two years (just finished #92 this morning), and here I am starting another.  In my write2unpack blog I write about things that are sexy, things that are uplifting, and random things like why people look like their dogs.  In this blog I’m going to journal my life with my husband who suffers from Multiple Sclerosis.  I’m hopeful our journey will resonate with others who suffer from MS, their caregivers, and the families who love them.

I’ve reduced my hours in the law firm from 40 hours to 20 hours per week.  Jeff and I discussed it and when the opportunity presented itself – we took it.  Reducing my hours at work was the easy decision, trying to figure out how to live with ½ income has been a little tougher. I asked my boss if I could go ahead and receive full wages but only work part-time and he said no. He’s unreasonable like that.

I reduced my hours to be more present at home.  I have 12 and 10 year old sons at home, and a retired husband with really sucky coordination. He falls down fairly often and I was worried he’d really hurt himself, one of the boys, or be really hurt when they were there and they’d be unable to help him. Now, when I say “really hurt himself” I’m not talking about the three times he’s fallen and cracked his ribs, or the broken toe, I mean REALLY HURT himself.  Hurt to the point of needing immediate medical care and he wouldn’t be able to get it, or my young children would see it and be unable to help.  Bad news for all involved… so I cut my hours.

On the upside I’m home with the boys to help get them off to school, and home to fix them a snack in the afternoon while J rests, and I get to work on my writing more as well as helping J develop his CBD Oil business.

What’s CBD Oil you ask? Glad you did! CBD is short for cannabidiol and is found in hemp, but also is part of the cannabis plant. Yes, that’s right, Marijuana.  CBD is the medicinal part and has many medical benefits.  THC is the part that gets you high.  While I live in Washington state, and marijuana is legal medicinally and recreationally, CBD oil is NOT illegal in any of the states (disclaimer: that I am presently aware of).  Here’s a link to some quick information about CBD.

J and I stumbled on CBD oil quite accidentally.  Our daughter-in-law worked at a local health food store and brought J some CBD oil to try. J has a myriad of symptoms from MS, one of them being these weird “leg seizures.” He gets what feel like electrical shocks in his feet that cause his legs to lock up.  He takes Baclofen for that, and is maxed out on the daily dose – trust me, we asked his neuro if he could increase it and she said, “Um, no. Sorry.” One night when his legs were bothering him, and also me (Don’t judge. Any of you sit next to someone who keeps jerking and locking his legs you’ll know what I mean. It’s unpleasant), so he decided to try it.

Now, it was night time, and the oil is in a dark bottle, and it said to start with two pumps.  Well, I kept thinking that it wasn’t coming out and actually gave him about 10 pumps.  It was like magic! His legs were still for the first time in a long time! And I don’t think you can overdose on CBD, so it was also great knowing I didn’t just poison my husband.

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Despite how great it is, this blog is not about the wonders of CBD oil. It’s about J and MS, and what it does to everyone. MS sucks. My hope by writing this is to let others know they’re not alone. MS affects everyone differently, but it affects everyone. It impacts my relationship with my husband, his relationship with his young sons, his very different his role as a father now than to his older children, his ability to work around the house, his ability to drive, and has now impacted us financially with my reduction in hours.

Oh, hey, by the way, did you know that in the State of Washington you can get paid to be a caregiver to your adult disabled child, but you cannot get paid to be a caregiver for your disabled spouse? Yeah, call your representative.  I could divorce J and get paid to be his caregiver, I even have a client who had to do that very thing, but we’re not there yet and I’m hopeful things will change before we ever reach that point.

Anyway, this is our journey with MS. I invite you to come along and share in our joys, failures, struggles, and perhaps some will resonate with you. I’m not alone in this journey and neither are you. Welcome.

My thoughts are my own, but my pictures are generally found on Pinterest or via Google. If what I write resonates with you please share with your friends or someone you think would like it! We’d love it if you follow us on Facebook (Melissa Gale or Living With Jeff), or Twitter (@livingwjeff or @write2unpack). If you have any topics you’d like to talk about, reach out to me at write2unpack@gmail.com, or Jeff at livingwithjeff61@gmail.com. Oh, hey, and if you sign up here to follow me you’ll never miss a post!